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Archive

Jan
12th
Thu
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“High-functioning”

John Elder Robison has turned advocacy for people with autism into one of his Aspergian special interests. He kicks ass in this interview with Steve Silberman from last May:

One of the things that troubles people about the use of labels like “low-functioning” and “high-functioning” is that people will call a five-year-old kid who can’t talk “low-functioning,” yet a kid who has language skills, like me, but doesn’t have any friends, is described as “high-functioning.” First of all, of those two children, the so-called high-functioning kid is the one who is at material risk for suicide by the time he’s 16. Most people would not call a dead kid highly functional.

I know two families with (non-spectrum) teenage kids who have dropped out of high school because of their inability to adapt themselves into their societally expected roles. The prospect of my “high-functioning” second grader struggling as they have weighs heavy on my heart sometimes.

Nov
13th
Sun
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The FOUR MINUTE AND FORTY-ONE SECOND VIDEO displayed within this post is both ENTERTAINING and HANDSOMELY PRODUCED

In it my TALENTED and BEAUTIFUL wife exhorts you for your ATTENTION and your MONEY, towards the creation of a TELEVISION PROGRAMME for NERDY and otherwise SOCIALLY UNCONFIDENT youth. 

Also in this video OFFSCREEN OBJECTS are KNOCKED OVER, resulting in the production of COMICAL SOUNDS.

Please consider VIEWING this video presentation, and receiving the ENTERTAINMENTS and MESSAGES therein.

[Kickstarter link] [YouTube link]

Sep
29th
Thu
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On Inclusion and Belonging

This is a picture of my father, when he was five years old. The year was 1942. 

This is not his school photo, it’s an identification card he received from the United States Army

My father needed this as proof to demonstrate that he was allowed to remain in California, even as his grandfather was put on a train and sent off to a fenced compound in the Arizona desert. 

I am a fourth-generation Japanese-American. And as such, in 1942 I would not have been welcome in the state of California. In April of that year, by law, I too would have had to report for relocation, as they called it. 

Here on the left is my great-grandfather, Riusaku Tanimoto, more commonly known as Frank.

Frank emigrated from Japan to the United States at the turn of the century, where he married a Mexican-American woman, Miquela Coz. But after he and Miquela separated, many of the family members went by the last name of Coz. 

In April of 1942 Frank was relocated to the Poston camp in Arizona. Because according to the government, these desert camps were where persons of Japanese ancestry in the Western states belonged.

But the Coz children petitioned for an exception, and remarkably, got it. My father, his sister and mother, and his aunts and uncles, were all granted ID cards stating that for them, the provisions of Executive Order 9066 had been suspended.

So my father was allowed to remain in California. Although on days kids called him “Jap” in the schoolyard, it was hard for him to feel that he belonged there.

This is Ernest Coz, my father’s uncle. 

When he was drafted, the Army had no way of knowing someone named Coz was of Japanese descent, not until a Basic Training bunkmate found his ID card and turned him in. Once identified, he was shipped off to the 442nd Infantry, because according to the Army, that’s where soldiers of Japanese ancestry belonged. 

But this isn’t actually a post about the history of Japanese-Americans in World War II.  

It’s about the reason my son has the opportunity to attend the school that he does. 

ASIP, the Asperger’s Inclusion Program is part of the Oakland Unified school district’s Programs for Exceptional Children. (PEC is what we grew up calling Special Education.)

In most school districts a child like mine on the spectrum might spend his school day in a classroom dedicated to children with special needs. Oakland’s ASIP program identifies certain such children as capable of participating with some support in a regular school classroom, with typical kids at their own grade level. 

For my son the ASIP program is a little like my father’s ID card. It says that—by law—my son is entitled to be where he is.

But the vision of the principal at my son’s school extends far beyond mere compliance to the law. She does not believe in teaching to the test. She believes in fostering the growth of the whole child as a way to build student achievement. And she has adopted the goals of the Caring School Community® Initiative, in which everyone in the community is cared for and respected. In which everyone belongs.

And in which diversity is celebrated. Cultural and ethnic diversity. Economic and gender diversity. And one that’s newer to many people: neurodiversity. In which different kinds of minds are welcomed and celebrated within a community. 

Because the goal of diversity isn’t about compliance. It‘s about what we gain from our interaction and participation with each other.

I’ll give you one example of what our school has learned from ASIP.

Part of the ASIP curriculum is a program called Superflex, designed to help children with Asperger’s cope with strong emotions that arise when dealing with other people, especially when things don’t go the way they might like. 

As the teachers in the younger grades were introduced to the Superflex concepts and materials, they realized that EVERY kid could use some extra help in navigating these same challenges. And so many of these teachers have adopted Superflex as part of their standard classroom curriculum for the year. 

Not everyone is required to be inclusive when it comes to my child.

Some kids will roll their eyes at his mannerisms, or his way of talking, and simply walk away. Some won’t extend an invitation to a playdate or a birthday party. 

But those children who do decide to be his friend, who welcome him into their play, who decide that he belongs, are participants in the vision of inclusion within a caring school community. And the challenge for us as educators and parents is to foster that environment, where everyone belongs. 

Sep
25th
Sun
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Sep
16th
Fri
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Dear puzzle makers: design choices like this can get a father punched by an ASD child who does not understand printing tolerances. Is all I am saying.

Dear puzzle makers: design choices like this can get a father punched by an ASD child who does not understand printing tolerances. Is all I am saying.

Aug
31st
Wed
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The boy’s big cousin taught him how to play with others, how to ride a scooter, how to goof around and make someone else laugh. 
His cousin is in fifth grade now, but will still sometimes walk with him away from the crowds to act out a movie scene, reflected in a shop window.
Big cousins are the best.

The boy’s big cousin taught him how to play with others, how to ride a scooter, how to goof around and make someone else laugh. 

His cousin is in fifth grade now, but will still sometimes walk with him away from the crowds to act out a movie scene, reflected in a shop window.

Big cousins are the best.

Aug
28th
Sun
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Loving Disruptions

When we stop at the donut shop the boy prefers to get a sugar-raised donut and a carton of milk.

At home, at school, everywhere he goes, the boy prefers one thing or another, typically the thing that is the same as the last time, or that one time, or every other time before.

Repetition, familiarity, predictability, sameness, all create a zone of safety for an individual on the spectrum. 

They also create ruts. Walls separating the individual from growth.

It is the role (some might say responsibility) of an ASD individual’s loved ones to disrupt the routines from time to time. To create moments of tiny chaos, that challenge them to tune into their surroundings. 

Like when Grandpa asked him to share some of his donut.

Sometimes these disruptions can trigger the shouting. (Again, with the shouting.) 

But sometimes, when introduced by someone close, the chaos can be created within a safety zone of its own. And the response can be confusion, instead of anger. An opportunity for a moment of give and take.

“What did you say?”

“I asked if I could have some of your donut.”

Sometimes the boy will assert himself, and state a desire to stick to his routine.

“Well, I don’t want to hurt your feelings, but… you can get your own donut.”

Acknowledging another person might not like his answer.

That is not a part of his routine.

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Not sure how I missed this

I might have heard about this 2008 Thai action movie, but missed the, you know, HOOK.

The trailer’s on YouTube. The whole movie’s streaming on Netflix.

I know what I’m watching tonight.

Aug
12th
Fri
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Sometimes autism looks like jazz hands in the middle of ten girls who either don’t know their lines or when to come in with them, and even though you know the script backwards and forwards you can’t whisper the lines because you’re wearing a body mic and you don’t want the audience to hear, and a couple of scenes from now you’re going to start panicking and crying because suddenly the teacher has moved a scene out in front of the curtains, which is not how you did it in rehearsal, but you still make your entrance on cue and say your lines confidently through tears because you are a FUCKING PROFESSIONAL, and after the show when you open your Hershey bar and find out that it’s broken and accidentally drop a piece of chocolate and the wrapper on the sidewalk and start screaming and thrashing and punching Daddy over and over and OVER again, and a few minutes later on the drive home, after he’s carried you to the car and you’re feeling much calmer, you ask why you did that, WHY did you hit Daddy like that, and your parents have no answer for you, although inside they’re both wondering if it’s time to start talking to you about autism. 
Sometimes, this is what autism looks like.

Sometimes autism looks like jazz hands in the middle of ten girls who either don’t know their lines or when to come in with them, and even though you know the script backwards and forwards you can’t whisper the lines because you’re wearing a body mic and you don’t want the audience to hear, and a couple of scenes from now you’re going to start panicking and crying because suddenly the teacher has moved a scene out in front of the curtains, which is not how you did it in rehearsal, but you still make your entrance on cue and say your lines confidently through tears because you are a FUCKING PROFESSIONAL, and after the show when you open your Hershey bar and find out that it’s broken and accidentally drop a piece of chocolate and the wrapper on the sidewalk and start screaming and thrashing and punching Daddy over and over and OVER again, and a few minutes later on the drive home, after he’s carried you to the car and you’re feeling much calmer, you ask why you did that, WHY did you hit Daddy like that, and your parents have no answer for you, although inside they’re both wondering if it’s time to start talking to you about autism. 

Sometimes, this is what autism looks like.

Jun
26th
Sun
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Like any other kid

When someone tells you their child is autistic, don’t tell them that you’re sorry.

Ask “What’s s/he like?”

Let the parent say “brilliant” or “funny” or “kind of a challenge these days.”

Ask “Does s/he have a special interest?”

Let the parent say “trains” or “baseball” or “elevators.”

There is a reason it’s called a spectrum (and not a continuum from “better” to “worse”). 

Every spectrum kid is different. Like any other kid is different.

Like any other kid, some days.